Checking in...

Hi Everyone! So... I just realized it has been WAY too long since I've posted on this blog but I wanted to check in to let you know I haven't forgotten about you. Not one bit. I also wanted to keep you in the loop as to how things were going with my POF...

The last time I wrote, I recently had my hormone levels checked (first time since prior to getting pregnant with the twins) and as I suspected, my levels were back at "post-menopausal levels." My FSH was around 50 but my estrogen was still in the normal range. Flash to three months later and my FSH had more than doubled, coming in at 110 and my estrogen had dropped to ZERO. It registered as undetectable. Which made sense to me because I had started feeling the effects of these hormonal changes. (hot flashes, night sweats and severe irritability). In fact, the irritability was so bad I was feeling like I couldn't stand being in my own skin! So I immediately went to Dr. Fu and she put me back on the herbs she was giving me from when I was trying to get pregnant. And let me tell you in a matter of a few days I felt SO much better. I have to take them three times a day and it really made a huge difference. I went from feeling like the Incredible Hulk on a bad day to little miss sunshine and flowers. It's a good thing, too. My poor husband was wondering what happened to his happy wife!

So here it is, months later and I am still on the herbs. I tried skipping a few doses here and there to see how things would go and Bam! I was right back to mega-bitch with a side of hot flashes (and apparently turning into Emeril LOL). So I now know I need to stay on the herbs three times a day without fail indefinitely. Not sure how long the symptoms are supposed to last. From what I've heard it's different for everyone. For some the symptoms will eventually dissipate and others they could last indefinitely. I have a feeling I'm part of the latter group, but time will tell. For now I'll just keep taking the herbs to ensure I remain sane!

While I am unbelievably grateful for having the twins, I can't help but feel a little bummed that I'm only 36 and my reproductive system is already caput. But, on the bright side I don't have to worry about turning into a fire-breathing monster in my 50s. I do think if I was younger or if I only had one baby I would probably try again via the same "all-in" approach I did to get pregnant with the twins, for I have no doubt it was the plethora of herbal concoctions and alternative therapies that momentarily got my body functioning again. The proof is that I'm back to full-blown POF. So I still 100% advocate at least trying to go that route if you're in the same unfortunate boat as I was being plagued with this condition. But you have to be dedicated and try it ALL. Balls to the wall, no holds barred, absolutely everything you possibly can. And, most importantly, never give up. Because miracles DO happen! Sometimes even two. <3

Sending oodles of love and positivity your way! 

19 comments:

  1. Hi Cole,

    Thank you so much for posting an update. It's too bad your hormone levels have switched back to post menopausal. Good thing the herbs are helping you though.

    I just have a few questions. Are you able to provide with what exactly is in your TCM herbal prescription? I am currently TTC, and am taking Chinese herbs as well as doing acupuncture. My FSH is currently in the 60's. l'd like to just do a comparison against my herbs to see if I am missing anything.

    Also, prior to getting pregnant, did you change your diet at all? Did you switch to gluten free? Do you think changing your diet contributed to you having success in getting pregnant?

    Hope to hear your response soon!

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  2. hello ..............can i get the herbs too
    i am facing the same issue of pof

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  3. my email address is javelightens@yahoo.com
    please tell me how to get the herbs

    i really need them

    ReplyDelete
  4. Hi There- I have been reading your blog for the last couple years. Just wanted to tell you a bit about me.
    I am 32 years old. I was dx with POF at age 30. At that time, my husband and I had been TTC baby #2 for a year. I have a gorgeous little 3.5 year old dd that I conceived on the 3rd month off birth control. I had one chemical preg when she was 1 year old, then nothing. Then the cycle wonkyness started. THen the hot flashes. Went to an RE. Dx with POF. HIghest FSH was 35. Fast forwards 2 years. I tried IVF twice with max stims. ONly made 1-2 follies. Ovulated prior to retireval both times. Tried one IUI, one follie, BFN. We chose to go the DE route, and I have a beautiful 5 month old son. HOwever, I have NEVER given up on my body. I have always hoped and prayed that one day I will conceive again. I got my period when my son was 17 weeks. I am waiting for my second cycle to start. I think I'm on day 36:( And pretty sure its annovulatory. BOOO. I am taking Ovaboost (Inositol and CoQ10 + EPO). However, I am noticing my hot flashes returning. THinking I need to need a POF dr.
    My question to you: YOu said you will stay on those herbs indefinietely. Are you not going to consider HRT? For bone and heart health? Although the herbs can mask symptoms, my understanding is they don't help with the actual lack of estrogen that is caused on the body? Any insight into this?

    Annie

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  5. I wanted to thank you for taking the time to be so candid with your experiences and sharing them with the world. You are certainly an inspiration. I have similar numbers to when you started your journey. I have been doing many of the things you have recommended here, TCM, acupuncture, herbs etc. Though, though I have not tried all of them. I will certainly add the missing methods to my regimen. But disappointingly, I have been on my regimen since January and have had no response. My FSH number just came back at 145. :( Because of my age, 39, my endo is now suggesting I take HRT. She believes that I have an autoimmune ovarian failure because I also have hashimoto's disease. Did you ever take any form of HRT when you were trying to conceive?

    Still Hopefull,
    Jaime

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    Replies
    1. As ironic as it sounds, I just viewed your public profile after positing this comment. It appears that you and I may live in my same small town. I live in College Park, (I saw your Dancing on the Drive post). It would be so helpful to me if you let me know who you used for your acupuncture treatments and where you were able to get your fertility massage?

      Delete
    2. Hi! Small world! I'm in college park a few times a week at Dance Trance! (It's my only chance to get out of the house during the week these days). I went to Ling's Acupuncture to see Dr. Fu (she's amazing). It's on Gatlin Ave. in Orlando. (407) 851-2533

      As for the fertility massage, I'll have to see if I can dig up her info since it's been a few years and I only went to her once. (She showed me how to do it myself so I took over after that.) I will get back to you if I find the info!

      Delete
  6. Hi Cole,

    My fertility doctor just pre diagnosed me with premature menopausal syndrome yesterday. I'm getting another FSH test done today but I really would love someone to talk to about how to reverse this naturally. We have no children yet so this is just devastating. I actually live in Orlando so finding your blog was a gift from heaven. Could I email you or call?

    Thank you so much!
    Laura

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  7. Hi. It's so exciting to hear a success story with low amh. I had a 0.05 and I felt devestated. I am now unexpectedly pregnant and so surprised. I was wondering though does the low amh or premature ovarian failure affect pregnancy? I'm at 7 weeks and praying everything goes well.

    ReplyDelete
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  10. Hi I just got diagnosed with pof I'm 36 and devistated. Can you please tell me what herbs you were taking and how your diet changed? Help me please
    They put me on 2mg of estrace and 200 ml of progesterone.

    ReplyDelete
  11. Hi all,
    I have also recently been diagnosed with pof at the age of 35 after 7 years of symptoms and a change of doctor! I had an idea I was going through premature menopause so it's not come as a shock but I didn't realise there was so many more downsides to it other than hot flushes etc I've been given hrt but very worried about the side effects so can anyone advise me of anything else that's safer? Thankyou

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